Misinformation in AD: influence of social media

Spring Live Global Virtual Symposium

Friday April 4, 2025 – 15:00 to 17:00 (Zurich Time, CEST)

Misinformation has been recognized as a critical Global Health challenge during the COVID pandemic, prompting its inclusion on the World Health Organization’s (WHO) priority list.

In the digital age, the rapid spread of health-related misinformation on social media poses a significant threat to public understanding and management of diseases, including atopic dermatitis (AD).

Misleading claims about treatments, causes, and preventative measures can undermine evidence-based practices, erode trust in healthcare professionals, and exacerbate the burden on patients.

This symposium led by the International Society of Atopic Dermatitis (ISAD) and its therapeutic education task force ISAD-OPENED will bring together patients’ representatives, social media experts and dermatologists to explore strategies for identifying, addressing, and mitigating the impact of misinformation on AD.

Through collaborative discussions, we aim to equip the global community with tools to promote accurate information and improve patient outcomes in the face of this growing challenge.

SESSION 1 / 15:00 ~ 16:00 pm (Zurich time)
10 min. presentation each

SPEAKERS:

  • portrait Cathal O’CONNOR
    Cathal O’CONNOR
  • portrait Marine CALVET
    Marine CALVET
  • portrait Alpana MOHTA
    Alpana MOHTA
  • portrait Dana SAADE
    Dana SAADE
  • portrait Mikael ALSTERHOLM
    Mikael ALSTERHOLM
Cathal O’CONNOR (Ireland) ➜ bio
Consultant dermatologist and paediatrician, University College Cork:

PhD in infantile neurophysiology in INFANT with Irish Clinical and Academic Training programme Postdoctoral fellowship in Great Ormond Street Hospital London and Crick Institute London Future Leader of European Society for Paediatric Dermatology and European Society for Dermatological Research.

Misinformation in Atopic Dermatitis


Marine CALVET (France) ➜ bio
Pierre Fabre Eczema Foundation:

Marine CALVET works as Project Manager for the Pierre Fabre Eczema Foundation, Corporate Foundation of the Pierre Fabre Laboratories dedicated to the fight against eczema. In her role, she oversees digital projects including the Foundation’s website and social media channels. Prior to this, Marine worked for two years as a Sales Engineer in the field of cosmetic ingredients. Marine holds an Engineering degree in Biology as well as a Master’s degree in marketing, Management & Communication.

The experience of the Eczema Foundation with social media handling


Alpana MOHTA (India) ➜ bio
Dermatologist:

Dr. Alpana MOHTA is a dual-board certified dermatologist with a fellowship in allergology from Hospital Clinic Barcelona and EAACI/UEMS certification in allergology and clinical immunology. With over 90 scientific publications, Dr. MOHTA is also an editorial board member of the International Journal of Dermatology. Her research focuses on psoriasis, tropical diseases, mycobacterial infections, and the impact of dermatological diseases on quality of life and public health.

Dr. MOHTA is the recipient of the Imrich Sarkany Non-European Memorial Scholarship from EADV and the Strauss and Katz World Congress Fund Scholarship from the AAD. In 2023, she received a travel grant from ISAD to present her findings on pediatric atopic dermatitis as a speaker.

Currently based in India, Dr. MOHTA is a private practitioner and through her growing social media presence, she strives to actively debunk misinformation and advocate for evidence-based practices in dermatology.

Misinformation in dermatology: experience of a dermatologist involved in social media


Dana SAADE (Lebanon) ➜ bio
Assistant Professor of Clinical Dermatology and a dermatologic surgeon, American University of Beirut Medical Center:

Dr. Dana Saade is an Assistant Professor of Clinical Dermatology and a dermatologic surgeon at the American University of Beirut Medical Center (AUBMC). Since 2018, she has been practicing in Lebanon, where she treats a diverse range of patients with various dermatologic concerns. Her primary focus is on surgical and procedural dermatology, where she specializes in both skin cancer management and cosmetic procedures.

Dr. Saade’s interest in Topical Steroid Withdrawal (TSW) began unexpectedly when she came across a TikTok video of a patient suffering from the condition. Intrigued by the impact it had on patients, she decided to delve deeper into the subject and explore it in her research and publication: “Investigating Topical Steroid Withdrawal Videos on TikTok: Cross-Sectional Analysis of the Top 100 Videos”. Her commitment to addressing this issue has led her to become an active member of the International Society of Atopic Dermatitis (ISAD) task force, where she works alongside global experts to raise awareness about TSW and correct the misconceptions surrounding it. Dr. Saade is dedicated to providing scientifically backed management options and relief for her patients, while combating the spread of misinformation in order to ensure better outcomes for those affected by TSW.

#TSW on TikTok, an example of a massive social media influence impacting AD patients


Mikael ALSTERHOLM (Sweden) ➜ bio
MD, PhD, Sahlgrenska University Hospital:

Mikael ALSTERHOLM, MD, PhD is a senior consultant, post-doc researcher and lecturer at The Department of Dermatology and Venereology, Sahlgrenska University Hospital, Gothenburg, Sweden and at the Sahlgrenska Academy, University of Gothenburg. Mikael Alsterholm´s field of expertise is atopic dermatitis and he does post-doc research work on various aspects of treatment and follow-up, including topical steroid withdrawal. He is also a member of the board for SwedAD, the nationwide quality registry for atopic dermatitis in Sweden.

Deciphering TSW as studied on a Facebook AD Group

SESSION 2 / 16:00 pm ~ 17:00

DEBATE: HOW TO FIGHT MISINFORMATION IN AD

Speakers
+

Hanof AHMED
Peter SCHMID-GRENDELMEIER

Jean-François STALDER
Alain TAÏEB
David TROYA

Who is this for, is there a recording?

Our event is free and open to all.
All participants have to register online on our platform to get the link to attend.

Publication

➜ Topical Steroid Withdrawal in Atopic Dermatitis: Patient-reported Characterization from a Swedish Social Media Questionnaire, Mikael ALSTERHOLM, DOI: 10.2340/actadv.v105.40187