Worldwide Atopic Dermatitis Organizations
Patient’s support groups are kindly invited to participate actively at the Society’s meetings.
The International Alliance of Dermatology Patient Organizations (IADPO), a not-for-profit organization, has created an online community dedicated to atopic dermatitis with a comprehensive list of
advocacies dedicated to AD at the global/regional/national level.
Website: altogethereczema.org
Patients’ support groups
Brazilian Atopic Dermatitis Association (AADA)
Brazil
AADA was founded in 1997 to improve the quality of life of patients with atopic dermatitis and their families through art, science and education. We organize support groups for patients and scientific meetings for physicians, create educational materials, and promote collaboration among patients, physicians and other healthcare professionals.
Website: aada.org.br
Association Française de l’Eczéma
France
The purpose of the association is to communicate and inform on eczema disease and support patients and their families to help them to improve their quality of life in collaboration with healthcare professionals.
Website: associationeczema.fr
Eczema Society of Canada
Canada
Our mission is improving the lives of Canadians suffering with eczema through support, education, awareness/advocacy and research. We support patient and health care provider education, offer support groups and support volunteer across the country, host patient events, help improve patient access to care and treatment, and support research.
Website: eczemahelp.ca
Dutch Association for People with Atopic Dermatitis (VMCE)
The Netherlands
Our mission is to improve quality of life of eczema patients. We work together with other skin disease associations to advocate for accessible, affordable and good quality of health care, also together with dermatologists and other professionals.
Website: vmce.nl
Eczema Outreach Support
United Kingdom
Our mission is to improve the confidence and self-management skills of families with eczema in the UK, offer personalised support and grow a community of peers while actively contributing to the improvement of relevant statutory services such as healthcare and education, and raising awareness of the condition globally.
Website: eos.org.uk
Global Parents for Eczema Research
United States of America
Global Parents for Eczema Research (GPER) was formed by two parents of children with eczema in 2015. Both parents had separately struggled with finding evidence-based information to guide medical decisions and a lack of safe, long-term treatment options to manage the chronic condition. At that time, there had been no significant new treatments developed for children with eczema in decades. GPER formed around the need for research to support evidence-based medical decision making on behalf of children with eczema and to create more urgency around the need for better treatments. Created for and by parents of children with moderate to severe eczema, GPER is a virtual organization with members representing five different continents and 17 countries.
Website: parentsforeczemaresearch.com
National Eczema Association
United States of America
The National Eczema Association (NEA) improves the health and quality of life for individuals with eczema through research, support, and education.
Website: nationaleczema.org
National Eczema Society
United Kingdom
To provide people with independent and practical advice about treating and managing eczema and to raise awareness of the needs of those with eczema with healthcare professionals, teachers and the government.
Website: eczema.org
Norwegian Association for Psoriasis and Eczema
Norway
We are two organizations, one for adults, and one for children and youths. Our aim is, among others, to ensure the life quality both physically, mentally, socially and economically of people living with psoriasis, atopic eczema, other skin conditions and psoriatic arthritis. We wish to make the diagnosis understood, known and accepted. We wish to ensure all affected by the diagnosis is given equal treatment and care, regardless on where you live within Norway.
Website: pefnorge.no
Skin Sri Lanka
Sri Lanka
“Skin Sri Lanka, established in 2018, is the first patient-led dermatology organization in Sri Lanka dedicated to supporting individuals living with dermatological diseases and skin-related conditions. As a proud member of the International Alliance of Dermatology Patient Organizations (IADPO / GlobalSkin), we work to uplift the lives of patients—particularly those affected by atopic eczema—through advocacy, education, and compassionate support.
We envision a Sri Lanka where people with skin conditions have timely access to quality care and treatment, are free from stigma or discrimination, and do not face social or economic hardship due to their condition. Our work focuses on:
- Patient Advocacy – representing the voices of dermatology patients in national and international platforms to ensure their needs are recognized in health policy and community systems.
- Education & Empowerment – providing reliable information, workshops, and training for patients, caregivers, and healthcare workers to improve understanding and management of skin diseases.
- Support & Community Engagement – offering emotional and practical support, promoting public awareness, and enhancing social acceptance of patients living with chronic skin conditions.
- Research & Collaboration – engaging in local and international partnerships to advance research, improve care standards, and strengthen the global dermatology patient community.
Skin Sri Lanka remains committed to fostering a supportive environment where every person affected by a skin condition can live with dignity, confidence, and equal opportunity.”
Dr Ajith KANNANGARA
.
Facebook: facebook.com/skinsrilanka.org